Epilepsy, Topamax, and the Prescription Assistance Program

I have epilepsy and Topamax is now $1,200.00 a month! I have no choice, but to get help from the Johnson and Johnson prescription assistance program and of course I’m thankful for a program like that.

First let me tell you that when my seizures began NO medical plan would take me unless I was two years seizure free! Don’t you love the medical industry in the USA? Well two years seizure free never came for me.

So back to the Prescription assistance plan. If I don’t call my prescription in early enough the pharmacy doesn’t have my medication on hand, so I called 1 day early to make sure they were stocked up. They called in my medication to the prescription assistance plan and it went through. It should never go through if they’re not ready, but they put it through which means they only paid for 70 something pills. I take 3 pills at night and 3 in the day. I have grand mall seizures! Then they said, I can’t refill it until the 14th of the following month and I ran out like two weeks ahead of time. I let them know that I had no more pills, yet they were the ones who put it through early. The manager said there was nothing they could do. So, I am here with two weeks and no Topamax.

I told my mom that we shouldn’t feel guilty for their help. We shouldn’t have to beg. We shouldn’t have to worry about me having grand mall seizures like this! We are damned if we don’t call the prescription in early because the pharmacy has no Topamax and damned if we do because now we know this will happen!

They need to change their policy if they are really trying to help people. How does it help when people are in a bind and can have a grand mall seizure LOL?! I think my mother’s friend is going to put my medication on a credit card. What about all the epileptics who get in this position and have no one to go to and no one to help them? Someone needs to do something about the price of medication now!!!! It is a basic human right to have health care.

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